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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- trents replied to SarahWarner's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
5 year old - awaiting biopsy results
Welcome to the forum, @SarahWarner! We cannot tell much from the numbers you supplied unless you also supply the reference ranges for negative vs. positive. Different labs concoct the tests differently and used different reference ranges. What we can say from what you have given us is that her total IGA is low which can cause a false negative in the... -
- SarahWarner posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
5 year old - awaiting biopsy results
I guess I don’t really have a question but after 3 years of symptoms and being sent away from dr after dr and multiple hospital visit we found a paediatrician who listened and done iron studies which come back iron deficient without anemia which prompted her to test for celiac which come back as below IgA <0.06g/L deamidated gliadin IgG 244U... -
- pjrhancock replied to Carlyallyn's topic in Related Issues & Disorders3
Celiac induced small fiber neuropathy
Thank you so much for this info! I was diagnosed just a year ago, at age 69, and suffer from similar neuropathy symptoms. I was advised that all I needed to do was to avoid gluten, and take Vitamin D3 and Calcium supplements! -
- trents replied to Royalred's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
Review after 2 years, alarming high numbers
"She tried her best to stick to gluten free, however it isn’t stuck to religiously." This is the problem. What factors are preventing your OT from being consistent?